What we think

We work to inform and influence policies that affect people with Down syndrome.

Our contact with individuals and representative organisations from around the world informs us as we influence discussions which are relevant at an international level and, where appropriate, alongside our members at a national level.

Please read the following position statements below:

Prenatal testing

COVID-19 vaccination prioritisation

We are undergoing a short review of other policy statements and will publish them to this page shortly. Please bear with us.

Latest

The Ambassador Committee

We work with a team of Ambassadors who guide our work and give us feedback.
Meetings: Running a focus group about health equity

These are meetings for people and organisations interested in running a focus group on health equity for people with Down syndrome and intellectual disabilities as part of the health equity consultation.
How to wash your hands.
World Autism Awareness Day 2024

The United Nations, in collaboration with the Institute of Neurodiversity, is hosting a virtual event - Moving from Surviving to Thriving: Autistic individuals share regional perspectives.

Our strategy

This is our plan of how we will make the world better.
Why we do our work

We want all people with Down syndrome around the world to be included in their communities.
How we work

Everything we do is guided by the views of people with Down syndrome and those who support them.
What we are trying to achieve

Our goal is to make sure people with Down syndrome and their families around the world have a say in all laws, policies and other decisions that affect them.