We are working with the following organisations and their members, with our role to advise on behalf of the global Down syndrome community and advise the community of key updates. 

Trisomy 21 Research Society

T21RS is a scientific organisation of researchers studying Down syndrome, founded to promote basic and applied research, stimulate translational research and apply new scientific knowledge to develop improved treatments.

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International Association for the Scientific Study of Intellectual and Developmental Disabilities

This special interest research group on Down syndrome, which forms part of IASSIDD, works in partnership with DSi to encourage research and the application of research in the field of Down syndrome.

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The Down Syndrome Consortium - National Institutes of Health

This U.S. based consortium of NIH and organisations interested in Down syndrome was formed to encourage the exchange of information about Down syndrome research, support and care. Work includes the DS-CONNECT registry.

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