Organisation members
People with Down syndrome and their families have a stronger voice when they work together as Down syndrome organisations.
The Down Syndrome International Network has more than 150 organisation members working in 113 countries.
Click on the icons in the map below to see information about an organisation.
There are two types of organisations in our network:
Representative organisations are usually national Down syndrome organisations that represent their country at DSi. Representative organisations are shown on the map with this icon:
Affiliate organisations are other Down syndrome or disability advocacy groups, or organisations that focus on specific issues like healthcare, education, or employment. Affiliate organisations are shown on the map with this icon:
What organisation members do.
Supporting people with Down syndrome.
Organisation members can give the best support to people and families. They understand the systems and what help is available.
Representing their country.
Organisation members watch and listen to what happens in their country. They tell the network about life for people with Down syndrome. This helps the network know where to help the most.
By sharing this information, the network can make better plans. They can help people with Down syndrome in the best way.
Speaking up.
Organisations in each country can make the most change.
We all work together to plan and run campaigns that can be shared worldwide.
This teamwork helps make a big difference everywhere.
Projects.
Our Programme team helps organisations with special projects. For example, they help start self-advocacy groups.
Self-advocacy groups help people speak up for themselves and make their own choices. The organisation supports them to do this.
What our organisation members say.
Down Syndrome Family Network
Trinidad and Tobago
"The network has supported us in our successful advocacy and activism for a more inclusive society."
National Down Syndrome Society
United States of America
"The network has helped us connect with like-minded partners that we work with to share best practices so we can support our community."
Turkiye Down Sendromu Dernegi
Turkey
"The network keeps us up to date with good practices and new information in the different fields relevant to Down syndrome."
Become a network member.
If you are part of an organisation that wants to join the Down Syndrome International Network, click below to learn more